The Renaissance of Ben

Barbara's Account of Ben's recovery.

Ben Bohlender

Thursday, May 25, 2006

The whole story

Talking to our friends who are reading Ben’s blog I realized that not everyone has heard the whole story of what happened to Ben a couple of months ago, so here goes. On Wednesday night, March 22nd at 11:30 we were in bed and I was still sitting up and reading, luckily a J.A. Jance mystery, one of my favorite writers. I need to write Judy, who I met at the Pacific Northwest Writer’s Conference last summer, and thank her for making her stories so compelling. Otherwise I would have woken up next to a dead husband.
Ben was tossing and turning and I was slightly annoyed with his uncharacteristic squirming about. All of a sudden he announced, “I’m sleeping on my stomach, ” which was odd. He flopped over, put his face flat down on the bed and immediately started snoring. I thought he was horsing around. Then his legs started going and I assumed he was imitating our dog Bones who chases rabbits and makes all kinds of snorts and squeaks in his sleep. “Cut it out,” I said, playfully slapping him on the butt. And then Ben’s legs really started kicking and he made more Bones-like noises.
I will always be thankful I looked over and noticed that Ben’s neck was bright red and puffed out like a blowfish. My first thought was that he was holding his breath, trying to freak me out. He’s always pretending to have a seizure or get electrocuted. Not funny by the way. Many husbands, including Ben’s brother, say they will never fool around with such things ever again. For some reason I had the good sense to pull down the sheet to check out the rest of his body. Fortunately we sleep in the buff, or it may have taken me longer to discover that something was seriously wrong. Ben’s neck was like a bullfrog, he was straining and I realized he was moving his bowels. That’s when terror shot through me. I’ve read enough mysteries and seen enough movies to know that’s what people do when they die. Then Ben’s body went limp and ice water ran through my veins. He lay perfectly still. I tried to roust him, hitting his face and screaming, but he was out cold.
I ran to the next room, trying not to go too fast so I wouldn’t stumble, and picked up the cordless phone off my desk. By rote, already numb and in shock, I dialed 911 and said, “I think my husband had a heart attack.” My mind flashed on stories of my friends, who when their child was hurt, were too hysterical to remember their addresses or phone numbers. I kept my cool and told them where we lived as I hurried back to Ben.
“Is he still breathing? “ the dispatcher asked.
Another jolt of fear went up and down my body. I climbed on the bed. “I don’t think so. He’s on his stomach and he went limp. How would I know?” I asked.
“Turn him over,” was the reply.
I put the phone down. I don’t know if you’ve ever tried to move a 165 lb. of dead weight, but it took all my strength to finally get Ben onto his back. His eyes were rolled back into his head, his skin a scary purplish-blue, his mouth bloody and it didn’t take a mirror test to see he was not breathing. “He’s not breathing. Should I start CPR?” I asked.
“You’re going to have to get him onto the floor,” came the reply. “It won’t do any good on the bed.”
“But I can’t,” I said, looking down at what seemed like miles down to the floor. I could barely get him turned over, let alone get him down to the ground. Clearly it was impossible.
“Do your best. You’re doing fine,” came the reply.
I set the phone on the bed and eased Ben over to the edge, no easy task. Then the reality of having to throw him onto the floor hit me. I struggled to find the phone, tangled in the bed sheets.
“I’m going to have to throw him on the floor. Won’t I hurt him?” I asked, petrified at the thought of Ben’s head hitting the oak floor.
“Just do it,” was the answer. “He’ll be okay. You’re doing great.”
I didn’t feel so great. Everything seemed in slow motion. I felt as if I was underwater and in some surreal dreamlike state. And I was so chilly. The light was cast with an eerie white blue. I threw a couple of pillows down to shield Ben’s head, I got on the other side of the bed and pushed with all my might. Ben went down with a nasty thud, missing the pillows, landing on the side of his face. I hopped down next to him, knowing I had to turn him back over, praying for the strength to flip him again. I did it. Then I searched for the phone, lost in the blankets. “Okay, he’s on the floor. Can I start CPR now?” I pleaded.
The horrible reply was, “No. Is your front door locked?”
I was frozen. “It’s locked,” I said. “Can’t they break it down?”
“No, it will take too long. You’ll have to go unlock it for the medics so they can get in.”
I pleaded to let me start CPR but the dispatcher explained it was more important that the medics be able to get in and do their thing right away. Next to Ben being blue and blood gurgling out his mouth, this was the hardest part, leaving my dead husband to go and unlock our front door. The journey downstairs felt like a lifetime. I went quickly but carefully, afraid of tripping and knocking myself out. I finally made it to the front door, leaving it open a crack and as I passed the living room I fussed with whether I should tidy up. But I realized cleaning up was crazy and I trekked upstairs, back to Ben. “Okay, the door’s open. Now can I start?” The last time I took a CPR class was in 1973 when I was an Evergreen student so I needed guidance, plus I had never actually done CPR on a real human being, let alone my own husband. First I had to clear Ben’s airway. He let out a horrible burble and blood dribbled down his chin. Then I had to put my lips over his, liver blue and so cold, wet with blood, giving him two breaths. More gurgling. Then I straddled my legs over his body and found the right place to push and I pushed with all my might, using all of my body weight. I thought I cracked his ribs but I knew I should keep going. Later I found out I had opened up his chest wall, which was good.
I was pumping on Ben’s chest when I heard a yell from downstairs, “Barb, its Dave Haag. Where’s Ben?”
I couldn’t believe our luck. It was our friend Catherine’s husband, a fireman. “We’re up here Dave,” I yelled back.
In a flash our tiny bedroom was filled with a SWAT team in black and they took over, Dave leading me out to the hall and downstairs. I stood alone in our living room, frozen and in shock, waiting for the outcome. It seemed like hours but later I learned it was only minutes before Dave came back downstairs.
“I’m sorry Barb. I’ve been on hundreds of these calls. It doesn’t look good. We’ve been unable to revive him,” Dave said. He called the chaplain for me.
I stood there, dumbfounded in my pink bathrobe, not quite believing what he was telling me, thinking of funerals and Six Feet Under. Dave made a call and suddenly a chaplain in a fireman’s suit appeared, wondering if I wanted to pray. You bet I did. I’d been praying the whole time but thought it might be more official coming from a chaplain so we prayed real hard. Then he asked if there was anyone I should call. My mind went blank. First I thought I didn’t want to impose on anyone by waking them up. It felt like the middle of the night but it was still before midnight. By rote I dialed phone numbers I could remember. I called Nancy and Bill, Nancy answered. The chilling words came out of my mouth, “Nancy, I think Ben’s dead.” She agreed to meet me at the hospital. Cecelia answered and she agreed to meet me too. I had to search for my sister Jane’s new number and I was just telling her that it looked like Ben had died of a heart attack when Matt, one of the medics, ran down stairs. Later at the hospital I learned that Matt was a friend of Ben’s son Tom.
“We’ve got a pulse and blood pressure,” Matt reported, jubilantly. I stood there, holding the phone out so Jane could hear what he was saying. Basically what he said was they had revived Ben on the fifth shock. We would know more in the next 24 hours whether Ben was going to be able to pull through. Later I found out that only a couple of years ago they only zapped someone 3 times.
The medics hoisted Ben down our narrow and steep staircase in a sheet, carrying him out our front door to the gurney and putting him in the emergency vehicle. Bones franticly ran up and down the driveway, yodeling and yapping, watching them leave with Ben.
I called Ben’s son Tom, waking him up. With a heavy heart I had to tell him, “Tom, your dad’s had a heart attack. I’m following him to St. Pete’s.”
“I’m there,” was Tom’s reply. Later I learned that Tom had driven 120 miles an hour to get to the hospital from Rochester.
The chaplain asked me if I wanted to get cleaned up before we went to the hospital. I looked down at my robe and my hands and realized I was covered in Ben’s body excrement. When I looked in the mirror, my face and mouth was smeared with Ben’s blood. I went upstairs in what felt like a dream and tried to clean myself up the best I could, but I didn’t want to take the time to take a shower. It sounds silly now but at the time I was befuddled with what in the world to wear. I put on Ben’s shirt that he had been wearing that day, wanting to keep his scent around me. I put on his jacket, the one with his wallet so I would have his information with me.
Before we could leave I had to get Bones back in the house and he was frenzied, wondering what had happened to his master. Finally the chaplain and I coaxed him inside. I felt terrible leaving Bones in such a state but I had to get to the hospital. On the way over, the chaplain spoke of Ben as a WAS. My blood pressure rising, I finally corrected him and said, “As far as I am concerned my husband is still an IS, thank you very much.” The chaplain back peddled, apologizing. (It’s amazing to me how many health professionals continue to refer to Ben in the past tense.)
The chaplain dropped me off at the special waiting room at the hospital, a cold concrete room with emergency vehicles light flashing outside. Tom arrived and they asked me if I would like a hospital chaplain to pray with. Of course I would. More family and friends arrived and we were shuffled from one bright white room to the next. Then the doctor came out and spoke to us, asking questions. (Ben’s critical care nurse turned out to be my friend Susan and she held me as I cried. My friend Natalie was the technician who ran tests on Ben’s brain activity- we hugged and cried together too. Ben’s cardiologist and critical care nurse turned out to be Tom’s customers- Tom owns Fishy Business on the Westside.)
Then came the daunting task of trying to figure out how long Ben had gone without oxygen. It took the medics 4 plus minutes to get to our house- luckily Dave knew us so he didn’t have trouble finding us or figuring out our front door. It had taken seven plus minutes to revive him. The question was- how long had it taken me to call the medics. Not long, but anything over six minutes for a brain without oxygen is not good- there was going to be brain damage and Ben might not ever come out of a coma.
It was grave. Ben couldn’t breath on his own. Because he had aspirated, he quickly developed pneumonia. Ben’s brother Mark spent the night with him the first night and it was touch and go. My son Abe arrived from New York in 12 hours after I called. My Aunt Alice and Uncle Dick, a Unity minister, came and prayed. My cousin Bill, the doctor, drove all night from Lake Tahoe, interpreting what the doctors were telling us. (Bill was the first medical person who gave us any hope.) Ben’s daughter Cheryl flew in from Louisianan. Even Ben’s 93-year-old mother was by his side as were most of Ben’s 8 brothers and sisters and other family members.
Over the next few days the doctors kept talking about me having to make a decision and asked questions about whether or not I wanted to keep him on life support. “You bet I do!” was my constant reply. “Whenever you think it’s time to pull the plug, let’s double or even triple the time.” Gone were my ideals about not keeping someone alive on life-support. The doctors kept telling me the first 24 hours were critical, then the next 48, then the next 72 and so on. Family and friends gathered and we basically took over the Critical Care Unit waiting room- we became known as the Bolender block party. We kept explaining that Ben was on a delay, you know how you ask Ben a question and 5 minutes later, after he’s pondered, you get an answer. So even though they might not think that he responding, we were sure he was going to, but on his own time.
A mass of loved ones huddled around him, looking for some sign. First he opened his eyes and we were ecstatic. I thought I would never see my husband’s baby blues again- the last time I saw them they were rolled up back in his head. The next vital thing was whether he could respond to commands or recognize loved ones. We told them that Ben had never responded to commands so they should ask him NOT to squeeze their hands. We were sure he was recognizing loved ones, but the doctors said, “The family always thinks that.” Finally on Sunday Ben’s eyes and head followed the nurse around and she too became a believer. But the doctors still warned that he might not fully come out of it, and they talked about quality of life issues. But we never stopped believing he was going to come out of it.
The doctors and Critical Care Unit nurses still don’t believe it. In 26 years at St Pete’s, only one patient who lost oxygen as long as Ben did made it out of the hospital alive. It’s interesting to me that as soon as Ben was moved up to the 9th floor all the nurses and doctors said there was no way he could have been without oxygen that long and be able to come out of it so fast. But you do the math- it was at least 12 minutes. Now, I guess it doesn’t really matter, the health professionals can think what they want. As far as I am concerned it was a miracle.

Wednesday, May 24, 2006

May 23 Wednesday

Things are looking up around here. My sister Ann left yesterday and I felt a sinking hole in my stomach and fear of whether I could make it without her. The occupational therpaist was here when Cappy came to pick her up and take her to the airport so I didn't have much of a chance to say goodbye, which was probably good. I cried on and off all day yesterday. My New York sister Ann did so much for us while she was here for a week- for one thing I learned how to use our digital camera, she got us set up on a new DSL line, made us wireless, saved us tons of $$$ on our phone bill, and we got moved into a safer place for Ben and me to sleep where I don't have to worry so much about him escaping and wandering the streets of the south capitol neighborhood. Ben has mde such improvement in the last week- I have been less stressed and can concentrate more on helping him with his therapies etc. Last night our friend Frank came and gave me respit care for 3 glorious hours while I ran errands, went to the library and spent time with girlfriends. Man oh man, I felt like a different person when I got home last night. And this morning I got the call that our COPES worker may start tomorrow which is AWESOME news- that will give me 3 hours a day to catch up on stuff- who knows, maybe even WRITE!!! I plan to go to the Y and work out, run errands, hang out with friends, take the dog for a walk and hopefully go to the library and write on my laptop. I'm not sure I can finish my novel right now I am so absorbed with the present but I am thinking of writing a memoir about all this that's happening- I think it's an amazing story filled with hope- my writing teacher Jessica thought I should whip it out and self-publish it. I've already got a title- Born Again. Again- thanks everyone- for all your help. Love, B&B

Tuesday, May 23, 2006

Ben's cardiologist

When we saw Ben's doctor today, he was amazed at Ben's recovery. He said he wished he had a video of how he had been so that he could see how well he is doing. Posted by Picasa

Ben's nurse Karla

We spent 2 hours at the doctors Tuesday. Karla, Ben's cardiologist's nurse is awesome. I talk to her just about every day and she takes care of what ever we need.. Posted by Picasa

Tuesday May 23rd

Ben's childhood friend Ron showed up for a visit. They spent time looking at pictures of Ben's 8 brothers and sisters- which is an exercise we do, trying to remember their birth order front and back. Ben loves talking to Ron about building and construction. Ron and his wife Joan visited Ben in the nursing home too. Posted by Picasa

Cappy- Ben's trainer

After Emily left on Monday, Cappy came and kicked Ben's butt, making him do his exercises again. Later, we watched Cappy's new documentary on her latest stained glass art. Ben found watching the process of Cappy making her amazing art fascinating. Cap is like my 4th sister and we consider part of the family. Thanks Cap for all you do! Posted by Picasa

Ben's physical therapist Emily

Emily couldn't wear Ben out no matter how many exercises she had him do. Posted by Picasa

John & Sarah

John and Sarah came for coffee Monday morning May 22nd. Later Ben wrote a detailed account of their conversation in his memory book, recalling amazing details about John's water company. Ben and John have known each other for over 30 years and Ben has a huge amount of respect for him. Sarah is a dear friend who has always been there for me. Posted by Picasa

Sunday, May 21, 2006

Old friends

Pete and Ben chatting it up. When Pete came to see Ben when he was in critical care, he told Ben, "Wake up Ben, the cows got out," since they both grew up on dairy farms and that's supposed to wake any dairy farmer up. Obviously it worked. Thanks Pete for all your help- Pete's been here for us since this happened- it will be 2 months tomorrow. Hard to believe that a month ago Ben was in a wheelchair and someone had to feed him. Now he was helping at the work party and we had to keep telling him he wasn't allowed to lift anything after his surgery. I really think the reason Ben is making such huge progress is all of YOU! Thanks so much! Posted by Picasa

Frank and Ben Philosophising

Frank was amazing- helping us move chairs and all the stuff out of Ben's office, vacuuming, sweeping up the new garage space. We couldn't have done it without him! Posted by Picasa

Shelly at the work party

Shelly washed our window that hadn't been washed in I don't know how many years. Shelly has been there for us every step of the way. Posted by Picasa

Mikel at the work party

We rearranged Ben's office into our bedroom/office and Mikel helped move all the stuff around. She's been awesome! Posted by Picasa

Ben took this of me

I feel it's only fair for me to blog myself at the work party seeing as aall of you didn't want your pictures taken and I hate this picture of myself. Posted by Picasa

Our neighbor Ellen

Ellen not only came to our work party on Sunday- she brought us delicious curry lentil soup for dinner which we just devoured. We are truly blessed with good neighbors. Posted by Picasa

Jon busy mowing our lawn

Vicki's husband Jon has been mowing the lawn and even weed wacking. When Ben told him how much he appreciated it, Jon told Ben to get well quick so he didn't have to keep doing it. Posted by Picasa

Saint Vicki

Vicki has been coming over and cleaning our house- we honestly don't know what we'd do without her! What a god-send! Thanks Vicki! You are awesome! (And thanks for letting me take your picture- I know- I hate it too!) Posted by Picasa

My two sisters with Ben on Saturday

Jane came down from Burlington to see Ann and help me with stuff only sisters would help with- we cleaned out the cellar so we could get ready for the work party on Sunday. Posted by Picasa

Theresa came to visit on Saturday

My sisters were blown away by all the beautiful women who come to visit my husband! Posted by Picasa

Saturday, May 20, 2006

Ben writing in his journal

Ben is deep in thought, trying hard to remember stuff- usually after working on this he is ready for a cat nap- the nurse said it's good for him to take several through-out the day- it's hard balancing his naps during the day and then aloowing him to sleep through the night- last night we only got up twice which is progress! Posted by Picasa

George installing hand rails for Ben

We finally have a shower for Ben upstairs! George is installing hand rails so Ben can get upstairs- with help of course- and sit on his new fancy shower stool and use his new hand held shower that George is installing. This may sound like small stuff but it's major for us! Posted by Picasa

Glen and Ben talking about serious real estate matters

By the way, we greatly appreciate those real estate referals- Ben is still licensed so we can get a referal fee if you remember to go through us if you or a friend is buying or selling- every little bit helps! Posted by Picasa

Lisa visiting on Friday

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Ben writing in his memory book

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Sunday quick work-party at 1:00

May 20 My sister Ann is still here- she goes back on Tuesday- I don't know what we'll do without her. Our friend Shelly picked her up from the airport which wa s so appreciated. I am typing this from my laptop- she got it on-line for me so I can do stuff while Ben is resting- we are finding that Ben needs lots of catnaps- like this morning he helped with breakfast and putting the dishes away and then he said he needed to lie down. My sister Jane is coming down today- between the 2 of them they are helping me prioritize, get organized and even helping me figure out my money situation. Ben continues to make progress on a daily basis- his balance is much improved and his short term memory is getting better too which is a huge relief- that's the big one the doctors look for. We're starting to take pictures of all the people who come over- I am going to start, as soon as Ann teaches me how to do it, posting the pictures on the blog so Ben can see them as well. We'll make copies and put them in his memory book so he can remember all the people who have come to visit.
My life is feeling a bit less frantic and I think as soon as we get the COPES worker every day my life will be managable. We're going to have to stay down stairs for a while according to Ben's therapists so we are moving things around once again. If you have any time tomorrow, Sunday at 1:00-ish, we were hoping to move a few big things and to pack up some some small things, so if you could stop by and help for a little bit it would be so appreciated. we're moving our bed out of the loving room and into Ben's office where there will be less chance of him escaping. The other morning I woke up at 4:30 and Ben was standing there fully dressed, ready to go outside and work. The scary thing was I didn't even hear him. That's going to be the hardest part, keeping him where I can keep an eye on him- he realy wants to do things like drive (I've got the keys hidden), walk up to the Frog Pond and buy smokes, go out and work on his construction project and go for a jog. Luckily we live on a cul-de-sac and all of our neighbors know him, but I've got to get him an ID bracelet and a medical alert bracelet if god forbid he gets away from me.
That's all for now- we are going to post some pictures next. Thanks for all your help and support. Love, B&B

Sunday, May 14, 2006

Memory Book

Mother's Day evening- Leah is here looking at Ben's memory book and old family albums. We started Ben's memory book today so Ben can look up stuff when he forgets his info on himself etc. It's pretty cool- Ben's writing it all himself! Al And Ivy stopped by and Ben enjoyed talking about real estate and building etc. Things are going so much better thanks to all your help and support- I can't tell you what a differnce it has made. I was frantic a couple of days ago- today things are smoothing out for sure. My neice Alexandra organized an organic box of veggies to be delivered to the house every week for the next 5 months and I am esctatic! I really wanted to get to where I had the time to make raw foods, juices and all healthy brain and heart food for Ben so he can get well faster. I've decided to put him on the wheat free/gluten free with me so it's TONS easier and probably TONS better for him too! I'm so excited that things are finally coming together- next week we start Ben's 3 therapies at the house instead of having to go out! Yippee! And we have a nurse coming to check on Ben at the house every 3 days. Thank you Medicare! In a couple of weeks we'll have the COPES program coming in to help us hopefully 90 hours a month and that will be awesome. And the best news of all is my sister Ann, the one who put this blog together for me, is coming from New York City next week to help me figure out how to do my life from this point. I'm so happy- I have the best sisters in the world- not to mention best family and best friends. Thanks!

THE SCHEDULE

Mother's Day- happy day to all of you with mothers and all of you mothers. Last night after my sister Jane left (she spent the night Friday- thank goodness), Cappy showed up and spent the night last night! For those of you who have offered to help- here's our latest schedule of when I've got people coming to help look after Ben etc. Today, Sunday I'm not sure if anyone is coming- I haven't heard back yet. Tomorrow is Monday and Marilyn is stopping by during her lunch hour, Megen is coming at 3:45 and Norma is coming at 6, and then Cappy is coming to spend the night so I can get to my doctor's appointment early Tuesday morning. That's all I know for sure. If you want to post something on this blog, you need to go to blogger.com and sign in- it's actually easy- even I could figure out how to do it! Again- thanks to everyone! Love, B&B

Friday, May 12, 2006

IT"S WORKING! THANKS

May 12 Friday 6:00PM Shelly talked Ben down while I made phone calls to Ben's doctors. Then our friend Ditty came over and hung out- they showed me how to put oil in my red car so I can drive that instead- tons cheaper on gas and easier to load and unload Ben's walker etc. Ben got his watch on and started wanting stuff like his wallet. Then Megen came- her dad had Alzheimers so she KNEW WHAT TO DO- she's incredibly patient with him and Ben keeps telling her how much he appreciates it. They've been working on excercises from Ben's Physical therapist all afternoon. I got some of Ben's paperwork and calls done and I feel so much less stressed- even did some laundry and cooked dinner! Next Ben's son Tom is coming, then our neighbor Marily at 7 and then I begged my sister Jane to drive down from Burlington and stay with me- she'll be here tonight. THANKS EVERYONE! Appreciate the help so much. If you want to hang with Ben, he seems to love it and I can really see it's helping both of us. (I was going to say him and me but I knew my mother would correct my grammar) Love, B&B

HELP NEEDED

May 12 Friday I could realy really use some help as in coming and being here with us at the house. Shelly Hanson is here now, helping me with Ben and Megen is coming at 3:45 but he is really active and agitated and wants to get up and he's in danger of falling. Shelly just got him calmed down. If you can please just come by. Otherwise I am going to have to take him back to the hospital and I believe that is what triggers him to get this way.
Ben had seizures last night and I called 911 at 3:30 in the morning and we spent 5 hours in the ER. I follwed the medics in and when I walked into the ER room, Ben cried when he saw me. He thought he had been dead and it was 2066. His first question to me was , "Oh Barb, did you remarry?" When I told him we were still married he wept. Both his heart and head doctors wanted him tappered down off his anti-seizure meds, both thinking Ben hasn't had seizures. The ER disagreed and put Ben back on his original dose.
Sarah and John, who were coming over to sit with Ben this morning, met us at the ER as we were leaving- it was good to get some hugs and laughs. Needless to say, I am about as stressed and sleep deprived as a person could be. Ben luckily doesn't remember what happened so he's not affected by it as I am. Anotherexciting night and I question whether I am doing the right thing keeping Ben at home. Our only other choice at this moment is Puyallup.
Shelly told me to put it out on the blog that I need help and I do. Our number is 786-8030. Thanks. Love, B & B

Wednesday, May 10, 2006

Just call him Lucky Ben

When Ben woke up from his surgery this morning, he said he wanted to change his name to Lucky. So I told him we'd call him Lucky Ben from now on. The stent placement went great- they were able to do the 2 stents, which the doctor wasn't sure if he'd be able to do until he got in there. I left Ben lying peacefully in room 1016 where he will stay for tonight- he has to lay quiet and not move his leg since they did the procedure up his groin. Me, I'm bushed and so sleep deprived I'm punchy. As soon as I make a fer phone calls etc., I'm taking one of my Ambiens and going to bed. Oh yeah, the only downside is Ben will have to wear one of the helmets in bed- he's fallen getting up in the middle of the night and he has to be on heavy duty blood thinners for 6 months.
I wasn't feeling so lucky this morning- we had to be to the hospital by 6am. and when we got in the car it wouldn't start. I had to call AAA so we were late. I'll tell you what, I've been shedding a bunch of tears these last couple of days- I guess I hadn't cried in a while and I was so terribly worried Ben wouldn't make it throught this procedure.
We had a busy day yesterday- we had the in-home assessment- the social worker thinks we will qualify for the highest amount of in-home help of 90 hours a month. She said we could request that it be someone we know. All that's required is a day long class. The pay is something like $9.10 an hour but it should be pretty easy work of hanging out with Ben so I can get some things done. If you know anyone who might want the job, have them call our social worker Jennifer Miller at Home & Community services- 360-664-7575 and she can tell you where to go to get the classes etc. I was thinking someone who needs to supplement their income or someone like a college student or... The gig will start in a couple of weeks, the schedule to be determined, but most likely a couple of hours in the afternoons.
We also started rehab at St Pete's out-patient. One of the things we have to start is a memory book for Ben so he knows where to look up the million of questions he askes me each day of 'What happened? Why am I like this? Am I losing my mind?" etc. Now we have some exercises Ben can start and that will be helpful. He's extremely motivated to get well. Again- thanks for holding us in your hearts and prayers. I've got one more thing to do, then it's beddy-bye for this tired, and extremely grateful wife.

Sunday, May 07, 2006

This week

Later on Sunday May 7th Just to let some of you know what's going on this week. We've got a doctor's appointment on Monday- I don't know what time yet- will find out tomorrow. Tuesday we get the inhome assessment by Medicare at 10:00 and Ben starts Physical Therapy at 1:00- 3:00. Then at 6AM on Wednesday Ben goes in for his heart surgery and he will spend the night at St. Pete's.
When I am going to need some help is for someone to look after Ben on Saturday 10:30 to 2:30 May 13 while Cappy and I go to Evergreen to learn about African cooking (we signed up ages ago). I can bring him to your house. In a couple of weeks we'll have in-house nursing care and Ben will start 3 hours of therapy most days so life will be much easier. It's amazing how much mischief my husband can get into in a matter of seconds. At the nusing home they started calling him Houdini the second day. We've had a wonderful day- Ben's walking MUCH better today and mostly remebering who came to see him and who talked to him etc. Again, Thanks! Love, B&B

Close Call

Sunday May 7- Yesterday when Ditty was carrying down our big TV VCR and I was stupidly behind him on the stairs, Ben was alone downstairs for a few minutes by the time we manueverd down the stair and Ben was GONE! I called for him, Ditty and I ran around franticly looking for him and found him WALKING UP THE STAIRS (with no hand rails mind you) to the new garage addition. To make matters even scarier, Ben was holding a pole with a hook on the end. We coaxed him back down without any mishaps thank goodness, But for those that have seen our new addition you'd know how trecherous that would be for someone with limited balance. Right now George and Sherry are taking Ben for a walk with his walker- we go up to the end of the street and back. More friends are coming today to help me with moving stuff so we can clear paths for his wheelchair etc. Here's Pete so I'm going to sign off. Thanks for your help!

More Angels Needed for a Few Days

My son Chris and I visited with Barbara and Ben yesterday afternoon. Though we didn't stay too long - it was just enough time to give Barbara some help and time to take care of things around the house. While Chris took Ben on a walk up the block in his fancy walker - Barbara and I made up beds with clean sheets, neatened up the living room and rearranged some furniture, and organized laundry. Ben is doing remarkably well since the last time I saw him - we all laughed and told jokes and he wanted to know what we were doing with our lives. Barbara and Ben adore each other and it is so good that Ben is home with his familiar surroundings. But with being home there are certain limitations and responsibilities that come with the territory. Barbara can't leave Ben for a second which means that a simple task such as doing laundry or going upstairs to take a bath all take some careful planning. So many people have asked what they can do - so if you have a little time, just an hour or so, it would be really helpful to Barbara if you could take Ben for a walk, visit with him for a bit so that Barbara could take a bath, cook or take care of housekeeping chores for a short time. Since she can't always answer the phone or listen to messages - if anyone wants to call me I would be more than happy to coordinate a schedule. My cell phone is 360-420-5241 and my email address is jane@dollyvardenalaska.com . It's just an idea, but if we could somehow get together and coordinate an effort I am sure Barbara would be very grateful. Barbara is trying so hard to take care of herself and the best way for her to do this is to have some help with taking care of Ben. Since Ben will be having surgery on May 10th - there are just a few days. When he comes home after the surgery there will be another set of needs and criteria. At that point I beleive the in house rehab will have a schedule etc which we don't know yet. Thank you everyone, Barbara and Ben have the best friends anyone could have!

Thursday, May 04, 2006

Angels sweep in!

Just when I was in the greatest dispair this morning, wondering how I was gonna do everything that needs to be done, Vicki swept in and took over, doing laundry, washing the kitchen floor vacuuming and best of all, helping me get Ben upstairs for his first real bath in over a month! By the way, Vicki has a house cleaning business and I HIGHLY recommend her- she's AWESOME and I've had many people attempt to clean my house over the years. Vicki can be reached at 456-8278. Shelley came a walked Bones as she has done 5 days a week for him since tgis happened- what a god-send. She has a dog-walking business which I also HIGHLY recommend- Bones does too! He's been in a great space thanks to Shelly. Then Mike and Jessie, the guys who were working on our house remodel stopped by- Ben was thrilled to see them. Ditty stopped by last night and Ben told him, "You know, I love you so much, you're a man I could kiss." So sweet- and funny if you know Ditty, Ben's brother with a different mother. Then son Tom stopped by which was awsome- I was able to catch up on the copious piles of laundry that seem to grow each minute. Then Medicare delivered Ben's new wheelchair- I bought him a good walker at Costco. Cappy researched and located a good GPS system so Ben won't wander off so we'll have that in place shortly. I got approval for Medicare, Medicaid so everythings good. Now I have to apply for handi-cap stickers for the car- Ben's excited about that- I keep telling him there are so many gifts coming out of this experience. Tomorrow Ben gets his EEG again. Then we have to pick up even MORE medical supplies and stop by the nursing home one last time and pick something up from his cardiologists. Next week we can start back at Yoga at the Y, as per his physical therapist. Then the 10th he gets his heart surgery.
I was wondering if some of you could help us with a few things such as moving a few items around and installing some safety handles for the bath tub and the stair case. I was thinking this Sunday the 7th after noon-ish if that works- it shouldn't take long. And my friend and writing mentor Jessica Morell (who is teaching at Evergreen) will be here from Portland this Friday at 7pm reading from her latest book on writing- she is AWESOME! Hope to see you there- I hope, if all goes well, to bring Ben with his walker or wheelchair. A little culture never hurt nobody! She'll be helping us with a few things Saturday morning before she heads back to Portland if you want to visit with her as well. Again, thanks- just when I am in the greatest need, someone appears to answer my prayers. We are truly fortunate to have such good friends. The only bad thing was Ben fell, flat on his face, hitting the stone fireplace, lots of blood from his nose but he's okay. He tried to get up and go to the bathroom himself last night- tonight I've got it wired so that can't happen again.

Wednesday, May 03, 2006

Ping Pong and Golf

Wednesday May 3rd- night- I'm sitting here with Ben, reading some of the blog- it's the first time I've actually looked at it or read it besides to post something new. Ann- you did an incredible job. And yes, that's my sister, the one that was married to Dave Barry, the humor writer. Ben says thanks for everyone's prayers, thoughts, cards and gifts. He's a bit teary eyed about all this. We keep going over and over the story of what happened to him. So far his short-term memory is still sketchy so I tell him the story over and over. I think the blog will be helpful for him to absorb all that happened to him. Today was exhausting- doctors appointments, checking out of Evergreen which took hours, going to Costco to get a truckload of supplies for Ben. I took him over to Bill and Nancy's while I shopped at 5:00 since we'd been out of the house since 10:30 this morning. Ben's a lot less wobbly today- he's been up and about a lot. When I went to pick him up from Bill and Nancy's, it looked like he was playing ping pong. He was talking about doing some golfing soon so I know he's getting better. I'm ready for bed- Ben got at least 12 hours of sleep last night- I was a bit hypervigilant, worrying that he wasn't breathing or that he was starting to have seizures again. But tonight I'm sure I'll sleep like a baby. It's so wonderful to have him home! Love, Barbara and Ben
P.S. When Ben's nuerologist asked him to write a complete sentense as part of his tests today, Ben wrote, 'I Love Barbra' It was so sweet!

Working out!

Amazing- Home for a trial basis is working out! The hardest part is keeping Ben from standing up and walking on his own, which he has done. And he has fallen, but so far luckily he's fallen on the pads on the floor so no injuries. He's a million times better already. I definetely made the right choice for Ben's recovery. Today we have an 11:30 'care conference' at the nursing home and I'll have to return his walker and wheelchair and go rent our own. Then he goes to see his nuerologist at 1:15 and then hopefully we will be home the rest of the day. Bonesy and kitty were happy to have Ben home too- they both slept on our temporary bed in the living room. I'm so happy this is working out- I think we'll ALL be much happier and less stressed. Love, B

Tuesday, May 02, 2006

Trial Basis

May 2 morning - Finally finally finally got through the red tape at the nursing home and got permission to bring Ben home on a trial basis tonight. Yippee! Tomorrow we have a 'care conference' set up where all Ben's caregivers etc. will tell me what needs to be done when he's home, what equipment I'll need to rent etc. But for tonight they'll let me use their wheelchair and walker etc. And I forgot to mention in my blog last night that Ben will have his stint put it on May 10th- we go in at 6AM. He'll stay overnight at the hospital. That's all for now folks. Send us positive energy for tonight- it will be interesting I'm sure! And yes, I will need help since I have to keep Ben in eyeshot 24/7! So if you want to come over and hang out with Ben, we'd both appreciate it! Love, B

Ben to the Rescue

12 years ago when I had my hysterectomy and I was at St. Pete's- I called Ben at 2:00 in the morning. I was sobbing so hard I could barely talk. A mean night nurse had roughed me up and hurt me real bad giving me a shot. When I could finally get the words out to Ben, he said, "Hold on. I'll be right there." Soon I heard my husband's distinct thunk thunk thunk down the hallway, and I could hear him bellow, "Okay, which one of you nurses hurt my wife?" I'll tell you what. That nurse never set foot in my room again. Who-ah.
10:32 PM

Leaving Evergreen Nursing Home?

Who-ah, as Ben would say,what a day! Looks like we will be leaving good old Evergreen Nursing Home sooner than later- thanks in large part to Ben's cardiologist who saw Ben this afternoon. He was outraged that Ben wasn't getting adequate care and therapy at the nursing home. As soon as I can logistically line things up, such as renting medical equipment, learning how to care for Ben, fung shuing the house so Ben can get around, getting a GPS so we can locate Ben in case he wanders off, then I'm busting him out of there- actually I hope tomorrow.

I don't feel safe leaving there at Evergreen any more. He's got a Martha Stewart ankle bracelet in case he wanders off, but yesterday he set the alarm off 3 times and nobody came and checked it out. The times he's wandered off and out of the building, it's been other residents, not staff, who have caught him and returned him to the facility. Pretty scary to think of Ben, restrained in a wheelchair, rolling down Lilly Road in the middle of the night.

Anyhoo- I'm excited about getting him the H-E-Double-hockey sticks out of there. My goal still is to get him into the intensive in-patient rehab program at St. Pete's. I've been trying to get the nursing home nurse and part-time doctor to do the paperwork that would allow St. Pete's to evaluate Ben and see if he's ready for rehab, but they have refused to cooperate. A little conflict of interest there, perhaps? The fox minding the hen house? Finally, they say they will cooperate, but only after Ben's doctor made a call. But the reality is, the way Evergreen's bureaucracy works, it will take days, even weeks to process him through to discharge him. If I forgo their process and just bring him home, St. Pete's can evaluate him right away. If he's not quite ready, then I think he'll be better off at home.

All in all, it was a great day. I saw my doctor today and believe it or not, my blood pressure is down, even while I was ranting and raving to her